Sunday, November 16, 2008

No Excuses

Ida had treatments for more than 3 months now, and it's becoming a part of life.
She eats. Not much, beside when having cortisone on the menu... (in the last few days she's eating like crazy). She tries to be happy, even though it's obvious it's hard on her and she misses a lot of a healthy child life.
Beside the physical stuff, she is kind of bored doing the same things every day and not seeing other people. Today she was in the hospital the whole day, got to play with a friend (Melea, 6 months older than Ida, ALL) and had a great time. She cried when she had to go home. Hopefully she'll be well enough to visit the daycare with Camilla for a few hours later this week.

We spoil her. As we should (I'm actually very happy to see her eating chocolate).
Ida is a very clever girl and she knows exactly what's going on. So she makes most of the decision around the house right now... She wants to do everything by herself. She loves water and animals, she talks a little bit, and understands everything (Swedish + Hebrew) and as you see is very cute.

The only thing that still worries is the (lack of) walking. Ida recognize the existence of walking but does not really go there... In the hospital we're being told that a drug Ida is getting (vincristine) may cause bone pains. She is getting this drug every Monday this month.

(It's actually a pretty brutal part of the treatment)

Mentally Ida is way pass walking and beside crawling (forward and backwards) she is getting around in a variety of ways. She tries to walk on her knees (slow), gliding on an object she wants to transport, crawling on 3 with one hand holding something (uncomfortable). Preferably mama or papa carries her.

But she has to take her medicine. The feeding tube went out a couple of weeks ago and Ida needs to eat her medicine. We dissolve the pills in water inside a syringe and Ida drinks it. She does not appreciate it very much and often resist, but she knows she has to. In the hospital she is a star and tries to assist the nurses as much as she can...

It's not easy but it could be worse. In the first weeks in the hospital we saw all the playing kids in the corridors while Ida could not leave the bed, speak or eat. It's the opposite now with children who just start the treatment.

I promise to update the blog more often. It's nice to know people out there care about Ida and missed reading about her. Those of you who speaks Swedish (or wants to look at the pics) should check out Camilla's blog.

2 comments:

Johannes - 6 månader med Pappa said...

Hej Moran, har ni kommit i ordning i lägenheten? Eller bor ni i kartonger? :-). Ida är helt otrolig , Stark och Duktig! Jag var inne på Camillas blogg...helt otroligt vad hon har bloggat !! Jag ringer dig senare i veckan!

Mats

Anonymous said...

she´s the smartest kid i know, and the cutest too.
she´s an angel.

take care

lina