Day by day

There is not much to write about, so I wasn't writing lately.
Considering everything Ida is going through she is doing pretty good. She had a couple of tough weeks, was tired and cranky. She was getting cortisone again that might cause mood swings, it also gives apatite and indeed Ida went up close to 2 kg in weight!
Now she is better again, and very cute. Her blood test are good and the last biopsy (10 days ago) still shows no leukemia.
We had visits from my mother and then Camilla's mother was here this weekend. It's great for Ida to be with them. Here is a picture from en extreme baking session last Saturday.

Ida's treatments are still quite intensive, this week she is in the hospital every day to get some medicine. She also has a couple of pills she takes at home (she got much better in taking her medicine).
As I wrote before, Ida is treated according to a protocol (regimen), we're just about to start the next phase called 'maintenance therapy'. Ida is still going to get more or less the same drugs as before, only less often. So soon treatments would be take place every 2 weeks, and then up to 4 weeks in between treatments.
Until now Ida never missed a scheduled treatment, which is very good. But it also means she'll go in for a 5 days long treatment on 30/12. At least we don't have to make plans for New Years Eve...
A great part of Ida's relative well-being (she is actually fine most of the time, but we know she has cancer, hence - relative) is Camilla. Ida started her treatment about 130 days ago. On about 70 of those days she was in the hospital... Camilla was with her every minute (we all were there together on the first month). And beside taking care of Ida, Camilla would often send a piece of cake or the like to parents of a sicker child... "Normal" parents would find it hard to put themselves in our shoes, but once you comforted with a situation like this you just have to do the best you can, be positive and try to make the best out this. Camilla is doing above and beyond.
So we hope to be a little less in the hospital in the near future. Another mission, once Ida doesn't have pain any more - is to get her on her feet (literally). Here is a short video to demonstrate Ida's method of walking.



(She was showing some dance moves, too)
There is no rush, and we do have contact with a physiotherapist. It's going to be easier to get her to walk than to get her sleep by herself, that's for sure...